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International Annual Conference of ICCCPO in Oslo (Norway).15.09-19.09.2004
Klikom na tekstove i fotke dole da uvecate i saznate
sve o Konferenciji ICCCPO koja je odrzana u Oslu (Norveska) od 15.09-19.09.2004.g. U nasoj delegaciji su bili Sabahudin Hadzialic
i Sead Dedic.
Please, click on articles and photos down below to enlarge and find
out more about the ICCCPO Conference which has been held in Oslo (Norway), 15.09- 19.09.2004. Members of our delegation were
Sabahudin Hadzialic and Sead Dedic.
| DNEVNI LIST..20.11.2004.g. |
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| daily newspaper DNEVNI LIST..20.11.2004.g. |
| Oslobodjenje 14.09.2004.g. pred odlazak u Oslo |
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| Daily Oslobodjenje prior to departure to Oslo 14.09.2004 |
WEDNESDAY September 15 – HOTEL MUNCH
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Meet & Greet – 18.00 – 20.00
Srijeda, 15.09.2004.g.- Hotel Munch
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Susreti i pozdravi- 18:00- 20:00 sati
| Simon Lala izrazava dobrodoslicu 14.09.2004 |
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| Simon Lala expressed welcome to all |
| Dobrodoslica...Hotel Rainbow Munch..Oslo..14.09. |
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| Welcoming party....14.09.2004 |
| Italija, Srbija i Crna Gora, Bosna i Hercegovina |
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| Gatherings during the welcoming Party |
| Specijaliteti iz vise od 60 zemalja Svijeta |
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| Specialities from more than 60 countries |
THURSDAY September 16
1. Session 9.00-09.15 – CANCER SOCIETY (Tullinsgatan 2)
Chair:
Marianne Naafs-Wilstra, Netherlands
Title:
ICCCPO Opening Ceremony
Kristen Rangsnes, chair SKB Norway
Simon Lala, chair ICCCPO
Alan
Craft, chair SIOP
Četvrtak 16.09.2004.g.
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Sesija 9:00- 9:15- U prostorijama
Društva za rak (Ulica Tullinsgatan 2)
Predsjedavajući:
Marianne Naafs- Wilstra, Netherlands
Naziv: ICCCPO Ceremonija otvaranja
Kristen Ransnes, predsjedacvajući SKB Norveka
Simon
Lala, predsjedavajući ICCCPO
Alan
Craft, predsjedavajući SIOP
| Izvrsni odbor ICCCPO 2004 |
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| Executive committee of ICCCPO 2004 |
THURSDAY September 16
3. Session 09.15-10.00 - CANCER SOCIETY
Chairs:
Kristen Rangsnes, Norway - Katerina Kisseleva,
Russia
Title:
Children with cancer and school
9.15-9.30
Schooling children with cancer: Schooling integration program of the Spanish Federation of Children with Cancer
Hortensia Diaz Asper, Spain
9.30-9.45
One on One: Volunteer Tutor program to help adjust to school life while recovering
Mi Ok Cho, Korea
9.45-10.00
Is it possible to be well when you’re ill? About everyday life of school aged children under treatment of acute
lymphoblastic
leukaemia (ALL)
Hilde Fröland
Hauge, Norway
4. Session 10.30-12.30 - CANCER SOCIETY
Chair
Mark Chesler, USA
– Anthony Penn, United Kingdom
Title:
Siblings and survivors
10.30-10.50 UKCCSG
siblings project group: a multi-disciplinary and multi-agency project
Sue A. Ablett, Rene T. Marston, United Kingdom
10.50-11.10 Siblings situation (needs) when a sister or brother dies of cancer.
Margaretha Nolbris, Sweden
11.10-11.30 Support for children and teenagers
with newly diagnosed cancer: the young adult survivor programme 2001-2003
Leena Vasankari-Väyrynen, Finland
11.30-11.50 Striving for normality: the experience
of cancer related fatigue in young people
Faith Gibson, A. Richardson, J. Edwards, E. Ream, B. Sepion, A. Mulhall, United Kingdom
11.55-12.10 The life experience of our children: their role in the association. Ana Corrêa Nunes, Portugal
12.10-12.30
Discussion
5. Workshops 13.30 – 15.30 - CANCER SOCIETY
Chair:
Christine Wandzura, Canada
Title:
Managing your organisation: Record keeping, finance, communication plan, decision making
1) Organisations with paid staff
2) Organisations run by volunteers
Facilitators:
Christine Wandzura, Canada; Gerlind Bode, Germany
Irina Ban, Serbia & Montenegro,
6. Workshops 16.00 – 17.30 - CANCER SOCIETY
Chair: Julian Cutland, South Africa
Title:
Supportive programs: What can your organization offer?
1) Organisations in developed countries
2) Organisations in developing countries
Facilitators:
1) Irina Ban, Serbia & Montenegro; Sadie Cutland, South Africa; Edith Gryszpancolc, Argentina; Ira Soelistyo, Indonesia 2) Gerlind Bode, Germany; Marianne
Naafs-Wilstra, Netherlands
Četvrtak 16.09.2004.g.
- Sesija
09:15- 10:00- U prostorijama Društva za rak
Predsjedavajući: Kristen Rangsnes, Norveška- katerina Kisseleva,
Rusija
Naziv: Djeca oboljela od raka i škola
9:15- 9:30- Školovanje djece oboljele od raka: Program integracije u školama od strane „Španske
Federacije Djece koja boluju od
Raka“, Hortenzia Diaz Asper, Španija
9:30- 9:45- Jedan na jedan: Program Dobrovoljnih staratelja (tutori) kako bi se pomoglo djeci da se prilagode školskom
životu dok
se oporavljaju, Mi Ok Cho, Korea
9:45- 10:00- da li je moguće se osjećati dobro dok si bolestan? O svakodnevnom životu djece u kolskom
dobu koja se liječe od
Akutne limfoblastične
leukemije (ALL)
Hilde Froland
Hauge, Norveška
- Sesija 10:30-
12:30- U prostorijama Društva za rak
Predsjedavajući: mark Chesler, USA- Anthony Penn, Ujedinjeno Kraljevstvo
Naziv: Braća (sestre) i preživjeli
10:30- 10:50 UKCSG Grupa za Program za Braću (sestre) i preživjele:
multidisciplinarni i multiagencijski projekt
Sue A. Ablett, rene T. Marston, Ujedinjeno Kraljevstvo
10:50- 11:10 Situacija kod Programa za Braću (sestre) i preživjele (potrebe) kada sestra ili brat umre od
raka. Margaretha Nolbris, Švedska
11:10- 11:30 Podška za djecu i tinejdžere sa novim dijagnosticiranim rakom: Program preživljavanja za
mlade 2001- 2003, Leena Vasankri-
Vayrynen, Finska
11:30- 11:50 Težnja ka normalnosti: iskustvo od umora prouzrokovanog rakom kod mladih ljudi. Faith Gibson, A.
Richardson, J. Edwards,
E.Ream,
B. Sepion, A. Mulhall, Ujedinjeno Kraljevstvo
11:55- 12:10 Životno iskustvo naše djece: Njihova uloga u Asocijaciji. Ana Correa Nunes, Portugal
12:10- 12:30 Diskusija
5. Radionice 13:30- 15:30- U prostorijama Društva za
rak
Predsjedavajući: Christine Wandzura, Kanada
Naziv: Vodjenje organizacije:
Arhiva, finansije, komunikacijski planovi, donošenje odluka
a)
Organizacije sa plaćenim osobljem
b)
Organizacije koje vode dobrovoljci (volunteri)
Facilitatori:
- Radionice 16:00-
17:30- U prostorijama Društva za rak
Predsjedavajući: Julian Cutland, Južne Afrika
Naziv: Programi podrške. Ta može Vaša organizacija
ponuditi?
1)
Organizacije u razvijenom zemljama
2) Organizacije
u zemljama u razvoju
| Jedna od sesija tokom Konferencije |
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| One of the sessions during the Conference |
| Dnavni avaz 22.09.2004...po povratku |
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| Daily Dnevni avaz on 22.09.2004...after return to Bosnia and Herzegovina |
| Dnevni list..22.09.2004.g. po povratku |
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| Daily Dnevni list..22.09.2004..after return to Bosnia and Herzegovina |
| Nasa delegacija zajedno sa Mandy iz Luxemburga |
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| Our delegation together with Mandy from Een Haerz fiir krebskrank Kanner- Luxemburg |
| Jedna od zajednickih sesija SIOP-a i ICCCPO-a |
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| One of the joint sessions of SIOP and ICCCPO |
| Engleska, Irska, Luxemburg, Maroko, BiH vecera |
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| Joint UK, Ireland, Luxemburg, Moroco, Bosnia and Herzegovina dinner |
| Slobodna Dalmacija..23.09.2004..po povratku |
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| Daily Slobodna Dalmacija..23.09.2004...after return to Bosnia and Herzegovina |
FRIDAY
September 17
9. Session 8.30-10.00
- CANCER SOCIETY
Chairs: Gerlind Bode, Germany -
Title:
New developments in paediatric oncology
8.30-9.00
The Cochrane Childhood Cancer Review Group (ChCRG)
Leontien Kreemer, Amsterdam, Netherlands
9.00-9.30
New drug development
Auke Beishuizen. Rotterdam, Netherlands
9.30-10.00
Paediatric drugs: The role of parent organisations
Cathérine Vergely, France
10. Session 10.30-12.30 - CANCER SOCIETY
Chairs: Geoff Thaxter, United Kingdom;
Pia Bonini, Italy
Title:
Twinning: how to make it happen? Examples of support programmes of parent organisations
10.45-11.00
Kinderkrebshilfe, Austria – Fond Viden, Ukraine
Fritz Hausjell, Austria, and Svetlana Shut, Ukraine
11.00-11.15 Een
Haerz fiir krebskrank Kanner, Luxembourg
– A heart for children with cancer, Bosnia Hercegovina
Marie Marthe Bruck-Klees, Luxembourg, and Sabahudin Hadzialic Bosnia
Hercegovina
11.15-11.30 Lisa
Thaxter Trust, United Kingdom - Ashic, Bangladesh
Geoff Thaxter, United Kingdom, and Salma Choudhury, Bangladesh
11.30-12.30 Discussion
Petak, 15.09.2004.g.
- Sesija 8:30- 10:00- U prostorijama Društva za rak
Predsjedavajući:
gerlind Bode, Njemačka- marianne Ween, Norveška
Naziv: Nove informacije o razvoju pedijatrijske onkologije
8:30-9:00 The Cochrane Childhood cancer review Group (ChCRG)
Leontien Kreemer, Amsterdam, Holandija
9:00- 9:30 Nove informacije u razvoju lijekova u pedijatrijskoj onkologiji
Auke beishuizen, Roterdam, Holandija
9:30- 10:00 Pedijatrijski lijekovi: Uloga organizacija roditeja
Catherine Vergely, Francuska
- sesija 10:30- 12:30- U prostorijama Društva za rak
Predsjedavajući:
Geoff Thaxter, Ujedinjeno Kraljevstvo- Pia Bonini, Italija
Naziv: Blizanac program:
“Blizanac program”-
kako da se dogodi? Primjeri programa podrške organizacijama roditelja
10:45- 11:00 Kiderbkrebshilfe Austrija- Fond Viden, Ukrajina
Fritz Hausjell, Austrija I Svetlana Shut, Ukrajina
11:00-11:15 Een Haerz fiir krebskrank Kanner, Luxemburg- A heart for children with cancer, Bosnia and Herzegovina
Marie Marthe Bruck- Clees, Luxemburg i Sabahudin Hadžialić, Bosna i Hercegovina
11:15-11:30 Lisa Thaxter Trust, Ujedinjeno Kraljevstvo- Ashic, Bangladeš
Geoff Thaxter, Ujedinjeno Kraljevstvo I Selma Choudhury,
Bangladeš
11:30- 12:30 Diskusija
| Velika Britanija & Banglades "blizanac program" |
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| United Kingdom & Bangladesh twining program |
| Austrija & Ukrajina "blizanac program" |
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| Austria % Ukraine twining program |
| Luksemburg &Bosna i Hercegovina "blizanac program" |
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| Luxemburg & Bosnia and Herzegovina twining program |
| Bosna i Hercegovina "Srce...." |
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| Bosnia and Herzegovina "The heart for the kids with cancer in FBiH" |
12. Sesija 13:30- 15:30 U
prostorijama Društva za rak
Predsjedavajući: Simona Lala
Tema: ICCCPO historija i budući planovi
13:30- 14:00 ICCCPO, historija deset godina, Gerlind Bode, Njemačka
10:00- 15:30- Interaktivna sesija
13. ICCCPO Godišnja Generalna Skupština 16:00- 17:00- U
prostorijama Društva za rak
Predsjedavajući: Simon Lala, Novi Zeland
12. Session 13.30-15.30 - CANCER SOCIETY
Chair:
Simon Lala
Theme: ICCCPO History and
future plans
13.30-14.00 ICCCPO, a history of ten years. Gerlind Bode, Germany
14.00-15.30 Interactive Board Session
13. ICCCPO Annual General
Assembly 16.00-17.00 - CANCER SOCIETY
Chair:
Simon Lala, New Zealand
| Otvaranje godisnje Skupstine ICCCPO |
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| Simon Lala, president of ICCCPO opening AGA of ICCCPO |
| Izvrsni komitet ICCCPO |
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| E.C. of ICCCPO |
| Zajednicka fotografija.... |
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| Joint photo... |
| Magazin Profil..septembar 2004.g. po povratku |
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| Magazine profile...September 2004..after return to Bosnia and Herzegovina |
| Magazin Profil...II dio |
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| Magazine Profile...II part |
ICCCPO DINNER
ICCCPO večera- HOLMENKOLLEN RESTORAN
| Neli, Mendi i Mari iz Luksemburga |
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| Nelly, Mandy and Marie- Martha from Een Haerz fiir krebskrank Kanner- Luxemburg |
| Sabi, Irina Ban iz NURDOR-a- SCG i Sead |
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| Sabahudin Hadzialic, Irina Ban from NURDOR Serbia and Montenegro and Sead Dedic |
| Mari, Sabi i Sead |
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| Marie- Marthe Bruck Clees from Een Haerz fiir krebskrank Kanner Luxemburg, Sabi and Sead |
| Sabi i Den Mornar iz Vankuvera- Kanada |
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| Sabahudin Hadzialic and Dan Mornar from Vancuver- Canada |
| Sead, Sabi i Simon sa Novog Zelanda |
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| Sead, sabi and Simon Lala from New Zealand, president of ICCCPO |
The E- mail we have received on 28.09.2004 from the ICCCPO Secretariat:
Dear friends,
The ICCCPO Conference and AGA in Oslo has been a success.
More delegates than ever participated in the meeting and exchanged programmes,
talked about twinning experiences, family issuse, survivors, school and learned about new developments in paediatric oncology.
Also the Survivors' Programme, supported by CLIC UK,
was very interesting.
In
the Newsletter we will publish some of the papers that were presented in Oslo.
Twelf
organisations made a contribution to the Parents Helping Parents Fund and gave us the opportunity to support members
from developing countries to attend this meeting.
ICCCPO celebrated its Tenth Anniversary with a special session and a Tenth
Anniversary Booklet (supported by the Luxembourg group) that has been sent to all members.
The AGA approved the membership of 12 new organisations, and ICCCPO now has
76 members from 57 countries.
The social programme was excellent, thanks to our host, the Norwegian parent
organisation SKB.
We hope to meet you all (again) next year where the SIOP and ICCCPO will
meet together (Sept. 21-24) in Vancouver, Canada.
We will keep you informed about the programme.
Warm regards,
on behalf of the Executive Committee,
drs. Marianne C. Naafs-Wilstra,
chair OSLO Conference
Mail of support...Mailovi podrske:
30.09.2004.
....Thank you for those nice pictures which I could pick up for my next Union meeting in France
within one week! .....
Thanks a lot
Cécile Galzy
UNAPECLE - France
....Hvala Vam za ove lijepe slike koja mogu preuzeti za slijedeci sastanak moja Asocijacije u Francuskoj
naredne sedmice!...
Mnogo hvala
Cécile Galzy
UNAPECLE - Francuska
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