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Srce za djecu koja boluju od raka u FBiH- The heart for the kids with cancer in FBiH

Medjunarodna konferencija ICCCPO...Oslo, 15.09-19.09.2004.g.

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Pomoc za Viktora Tomasevica iz Sarajeva...2006.g.
POMOC ZA STEFANA BASRAKA IZ SARAJEVA...2006.g.
PROMOCIJA CD-a NA PLATOU ISPRED BOSANSKE PIRAMIDE SUNCA U VISOKOM, 24.06.2006.g. u 14:00 sati...
Rezultati Konkursa za kratku pricu 2006.g I DODJELA NAGRADA 17.06.2006.g.
Udruzenje u saradnji sa Fondacijom LOSEV iz Turske
NARUCITE U PRETPLATI CD- DJECIJA NEDJELJA..SRCEM ZA DJECU
DVIJE PJESME I VIDEO CLIP SU ONLINE..ZA DJECU...TWO SONGS AND VIDEO CLIP ARE ONLINE...FOR THE KIDS
Udruzenje u saradnji sa pet muzickih/glazbenih skola Srednje Bosne i OXY STUDIOM BUGOJNO snima CD...
QUATTRO MEDIA SARAJEVO I BARBIE & LEGO ZA UDRUZENJE, 25.03.2006.g.
Konferencija..Split..Hrvatska..11.05-13.05.2006.g.
CETVRTA SKUPSTINA UDRUZENJA...29.04.2006.g.
Pomoc za Narelu Kulo iz Olova..2006.g.
01.04.2006g. Aprililili Fest 2006- CLUB SLOGA SARAJEVO..za Udruzenje
POSJETA PREDSTAVNIKA QUATTRO MEDIA HEMATOONKOLOSKOM ODJELJENJU 27.03.2006.g.
JOHNYDAMISTA ZA DJECU KOJA BOLUJU OD RAKA U FBIH..25.03.2006.g.
BROSURE, BILTEN 2006.g...BROCHURES, BULLETIN 2006
Irska, 29.08-07.09 2006..g. Barretstown...Ireland, 29.08.-07.09. 2006...vacation in Barretstown
Izdavacka kuca PENN Tuzla i Udruzenje..Za Josipu Brajkovic- Italija..14.03.2006.g. i Enisa Omercica
Josipa Brajkovic je u Italiji od 14.03.2006...Little Josipa is in Italy since 14.03.2006
OTVORENO PISMO..20.02.2006..g...OPEN LETTER..20.02.2006
ICCD day..15.02.2006...Medjunarodni dan djece koja boluju od raka, 15.02.2006.g.
NOVOGODISNJI PAKETICI ZA 2006.g. ZA BOLESNU DJECU..NEW YEARS EVE PACKAGES FOR THE KIDS WITH CANCER
BH Festival volunterizma 2005..BH festival of voluntarism
U pripremi BH Survivors nase Asocijacije...In preparation BH survivors of our Association
AUKCIJA SLIKA U TRAVNIKU..06.12.2005.g...AUCTION OF ART PAINTING IN TRAVNIK..06.12.2005
Cestitke i Kalendari...Greeting cards and Calendaries
TRECA SKUPSTINA/SABOR UDRUZENJA 19.11.2005.g...THIRD ASSEMBLY OF THE ASSOCIATION, 19.11.2005
ZAVOD ZA JAVNO ZDRAVSTVO SBK/KSB---UDRUZENJE...HUMANITARNI PROJEKAT..KONCERTI..03.10.-10.10.2005.g.
MERKATOR 08.10.2005.g.- AKCIJA- SARAJEVO
Irska, septembar 2005..g. djeca u Barretstown-u...Ireland, September 2005...vacation in Barretstown
VANKUVER 2005...ICCCPO GODISNJA KONFERENCIJA 2005...VANCOUVER 2005...ANNUAL CONFERENCE OF ICCCPO
KUTAK ZA DJECU, NASE MALE HRABRE JUNAKE...CORNER FOR THE KIDS, OUR LITTLE BRAVE HEROES
Zelite saznati vise o malignim oboljenjima...? Do you want to know more about malignomas...?
Ako zivite van BiH..Kako nam pomoci?...If you live outside of BiH..How to help us?..Please read...
Otvaranje naseg poslovnog prostora, 18.06.2005...Opening of our premises on 18.06.2005 in Sarajevo
Catherine Bishop je trcala za djecu koja boluju od raka.Cathi Bishop was on marathon for the kids
Zahvalnost svima koji nam pomazu...Linkovi..Gratitude to all who are helping us..Links of Gratitude
Poslovni prostor- donacije za opremanje..06.06.2005.g.
Turska i BiH, 28.05- 06.06.2005.g., Medjunarodna sedmica djece koja boluju od leukemije
Beograd (SCG) 05.-07.05.2005.g.
HIP HOP AUTOR JOHNNYDAMISTA ZA DJECU KOJA BOLUJU OD RAKA
MAX MAGAZIN 26.02.2005.g...MUZIKA I HUMANOST...PROCITAJTE I POGLEDAJTE
START MAGAZIN 22.02.2005.g...procitajte
MUZIKA I HUMANOST...KROZ MOJE OCI..15.02.2005..g...Music and Humanitarian issues...THROUGH MY EYES..
Rofix tombola Sarajevo 03.12.2004.g.
Humanitarno knjizevna manifestacija, 30.10.2004.g. u saradnji sa Zavicajnim muzejom Travnik
II Skupstina/Sabor 23.10.2004.g.i info sa Prve 2003.g.II Assembly .2004..and info from First 2003
Donatori..pojedinci i preduzeca...Donors..individuals and firms
Medjunarodna konferencija ICCCPO...Oslo, 15.09-19.09.2004.g.
Kako nam pomoci?...donacije..podrska...How to help us?..donations...support...
About Us..O nama
Contact Us...Kontaktirajte nas
Recent and Upcoming Events...Nedavni i dogadjaji pred nama
Getting Involved..Ukljucite se
Actual...Aktuelno
Interesting links...Interesantni linkovi

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International Annual Conference of ICCCPO in Oslo (Norway).15.09-19.09.2004

Klikom na tekstove i fotke dole da uvecate i saznate sve o Konferenciji ICCCPO koja je odrzana u Oslu (Norveska) od 15.09-19.09.2004.g. U nasoj delegaciji su bili Sabahudin Hadzialic i Sead Dedic.
Please, click on articles and photos down below to enlarge and  find out more about the ICCCPO Conference which has been held in Oslo (Norway), 15.09- 19.09.2004. Members of our delegation were Sabahudin Hadzialic and Sead Dedic.

DNEVNI LIST..20.11.2004.g.
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daily newspaper DNEVNI LIST..20.11.2004.g.

Oslobodjenje 14.09.2004.g. pred odlazak u Oslo
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Daily Oslobodjenje prior to departure to Oslo 14.09.2004

WEDNESDAY September 15 – HOTEL MUNCH

  1. Meet & Greet – 18.00 – 20.00

      Srijeda, 15.09.2004.g.- Hotel Munch

  1. Susreti i pozdravi- 18:00- 20:00 sati

Simon Lala izrazava dobrodoslicu 14.09.2004
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Simon Lala expressed welcome to all

Dobrodoslica...Hotel Rainbow Munch..Oslo..14.09.
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Welcoming party....14.09.2004

Italija, Srbija i Crna Gora, Bosna i Hercegovina
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Gatherings during the welcoming Party

Specijaliteti iz vise od 60 zemalja Svijeta
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Specialities from more than 60 countries

THURSDAY September 16

 

1.     Session 9.00-09.15 – CANCER SOCIETY  (Tullinsgatan 2)

Chair:            Marianne Naafs-Wilstra, Netherlands

Title:              ICCCPO Opening Ceremony

                       Kristen Rangsnes, chair SKB Norway

                       Simon Lala, chair ICCCPO

                       Alan Craft, chair SIOP

 

Četvrtak 16.09.2004.g.

  1. Sesija 9:00- 9:15- U prostorijama Društva za rak (Ulica Tullinsgatan 2)

Predsjedavajući: Marianne Naafs- Wilstra, Netherlands

Naziv: ICCCPO Ceremonija otvaranja

             Kristen Ransnes, predsjedacvajući SKB Norveka

             Simon Lala, predsjedavajući ICCCPO

             Alan Craft, predsjedavajući SIOP

 

 

Izvrsni odbor ICCCPO 2004
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Executive committee of ICCCPO 2004

THURSDAY September 16

 

 

3.     Session 09.15-10.00 - CANCER SOCIETY

Chairs:         Kristen Rangsnes, Norway - Katerina Kisseleva, Russia

Title:             Children with cancer and school

9.15-9.30   Schooling children with cancer: Schooling integration program of the Spanish Federation of Children with Cancer

                       Hortensia Diaz Asper, Spain

9.30-9.45   One on One: Volunteer Tutor program to help adjust to school life while recovering

                       Mi Ok Cho, Korea

9.45-10.00   Is it possible to be well when you’re ill? About everyday life of school aged children under treatment of acute lymphoblastic

leukaemia (ALL)

                       Hilde Fröland Hauge, Norway

 

4.     Session 10.30-12.30 - CANCER SOCIETY

Chair             Mark Chesler, USA – Anthony Penn, United Kingdom

Title:             Siblings and survivors

10.30-10.50    UKCCSG siblings project group: a multi-disciplinary and multi-agency project

                        Sue A. Ablett, Rene T. Marston, United Kingdom

10.50-11.10 Siblings situation (needs) when a sister or brother dies of cancer. Margaretha Nolbris, Sweden

11.10-11.30 Support for children and teenagers with newly diagnosed cancer: the young adult survivor programme 2001-2003      

                       Leena Vasankari-Väyrynen, Finland

11.30-11.50 Striving for normality: the experience of cancer related fatigue in young people

                       Faith Gibson, A. Richardson, J. Edwards, E. Ream, B. Sepion, A. Mulhall, United Kingdom

11.55-12.10    The life experience of our children: their role in the association. Ana Corrêa Nunes, Portugal

12.10-12.30    Discussion

 

5.     Workshops 13.30 – 15.30 - CANCER SOCIETY

Chair:            Christine Wandzura, Canada

Title:             Managing your organisation: Record keeping, finance, communication plan, decision making

                       1) Organisations with paid staff 

                       2) Organisations run by volunteers

Facilitators: Christine Wandzura, Canada; Gerlind Bode, Germany

                                 Irina Ban, Serbia & Montenegro,

6.     Workshops 16.00 – 17.30 - CANCER SOCIETY

Chair:            Julian Cutland, South Africa

Title:             Supportive programs: What can your organization offer?

                       1) Organisations in developed countries

                       2) Organisations in developing countries

Facilitators: 1) Irina Ban, Serbia & Montenegro; Sadie Cutland, South Africa; Edith Gryszpancolc, Argentina; Ira Soelistyo, Indonesia    2)  Gerlind Bode, Germany; Marianne Naafs-Wilstra, Netherlands

 

Četvrtak 16.09.2004.g.

  1. Sesija 09:15- 10:00- U prostorijama Društva za rak

 Predsjedavajući: Kristen Rangsnes, Norveška- katerina Kisseleva, Rusija

       Naziv: Djeca oboljela od raka i škola

       9:15- 9:30- Školovanje djece oboljele od raka: Program integracije u školama od strane „Španske Federacije Djece koja boluju od

       Raka“, Hortenzia Diaz Asper, Španija

        9:30- 9:45- Jedan na jedan: Program Dobrovoljnih staratelja (tutori) kako bi se pomoglo djeci da se prilagode školskom životu dok

        se oporavljaju, Mi Ok Cho, Korea

        9:45- 10:00- da li je moguće se osjećati dobro dok si bolestan? O svakodnevnom životu djece u kolskom dobu koja se liječe od

 Akutne limfoblastične leukemije (ALL)

  Hilde Froland Hauge, Norveška

 

  1. Sesija 10:30- 12:30- U prostorijama Društva za rak

   Predsjedavajući: mark Chesler, USA- Anthony Penn, Ujedinjeno Kraljevstvo

         Naziv: Braća (sestre) i preživjeli

         10:30- 10:50 UKCSG Grupa za Program za Braću (sestre) i preživjele: multidisciplinarni i multiagencijski projekt

                              Sue A. Ablett, rene T. Marston, Ujedinjeno Kraljevstvo

        10:50- 11:10 Situacija kod Programa za Braću (sestre) i preživjele (potrebe) kada sestra ili brat umre od raka. Margaretha Nolbris, Švedska

       11:10- 11:30 Podška za djecu i tinejdžere sa novim dijagnosticiranim rakom: Program preživljavanja za mlade 2001- 2003, Leena Vasankri-

       Vayrynen, Finska

       11:30- 11:50 Težnja ka normalnosti: iskustvo od umora prouzrokovanog rakom kod mladih ljudi. Faith Gibson, A. Richardson, J. Edwards,

         E.Ream, B. Sepion, A. Mulhall, Ujedinjeno Kraljevstvo

       11:55- 12:10 Životno iskustvo naše djece: Njihova uloga u Asocijaciji. Ana Correa Nunes, Portugal

      12:10- 12:30 Diskusija

 

5. Radionice 13:30- 15:30- U prostorijama Društva za rak

Predsjedavajući: Christine Wandzura, Kanada

      Naziv:  Vodjenje  organizacije: Arhiva, finansije, komunikacijski planovi, donošenje odluka

a)      Organizacije sa plaćenim osobljem

b)        Organizacije koje vode dobrovoljci (volunteri)

      Facilitatori:

 

 

  1. Radionice 16:00- 17:30- U prostorijama Društva za rak

Predsjedavajući: Julian Cutland, Južne Afrika

Naziv: Programi podrške. Ta može Vaša organizacija ponuditi?

1)      Organizacije u razvijenom zemljama

2)       Organizacije u zemljama u razvoju

 

Jedna od sesija tokom Konferencije
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One of the sessions during the Conference

Dnavni avaz 22.09.2004...po povratku
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Daily Dnevni avaz on 22.09.2004...after return to Bosnia and Herzegovina

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Dnevni list..22.09.2004.g. po povratku
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Daily Dnevni list..22.09.2004..after return to Bosnia and Herzegovina

Nasa delegacija zajedno sa Mandy iz Luxemburga
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Our delegation together with Mandy from Een Haerz fiir krebskrank Kanner- Luxemburg

Jedna od zajednickih sesija SIOP-a i ICCCPO-a
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One of the joint sessions of SIOP and ICCCPO

Engleska, Irska, Luxemburg, Maroko, BiH vecera
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Joint UK, Ireland, Luxemburg, Moroco, Bosnia and Herzegovina dinner

Slobodna Dalmacija..23.09.2004..po povratku
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Daily Slobodna Dalmacija..23.09.2004...after return to Bosnia and Herzegovina

FRIDAY September 17 

 

9.     Session 8.30-10.00 - CANCER SOCIETY

Chairs:          Gerlind Bode, Germany -

Title:             New developments in paediatric oncology

8.30-9.00        The Cochrane Childhood Cancer Review Group (ChCRG)

                       Leontien Kreemer, Amsterdam, Netherlands

9.00-9.30        New drug development

                       Auke Beishuizen. Rotterdam, Netherlands

9.30-10.00  Paediatric drugs: The role of parent organisations

                       Cathérine Vergely, France

               

10.   Session  10.30-12.30 - CANCER SOCIETY

Chairs:         Geoff Thaxter, United Kingdom; Pia Bonini, Italy

Title:             Twinning: how to make it happen? Examples of support programmes of parent organisations

10.45-11.00 Kinderkrebshilfe, Austria – Fond Viden, Ukraine           

                       Fritz Hausjell, Austria, and Svetlana Shut, Ukraine

11.00-11.15    Een Haerz fiir krebskrank Kanner, Luxembourg – A heart for children with cancer, Bosnia Hercegovina

                       Marie Marthe Bruck-Klees, Luxembourg, and Sabahudin Hadzialic  Bosnia Hercegovina

11.15-11.30    Lisa Thaxter Trust, United Kingdom - Ashic, Bangladesh

                       Geoff Thaxter, United Kingdom, and Salma Choudhury, Bangladesh

11.30-12.30    Discussion

 

Petak, 15.09.2004.g.

  1. Sesija 8:30- 10:00- U prostorijama Društva za rak

Predsjedavajući: gerlind Bode, Njemačka- marianne Ween, Norveška

Naziv: Nove informacije o razvoju pedijatrijske onkologije

8:30-9:00 The Cochrane Childhood cancer review Group (ChCRG)

                 Leontien Kreemer, Amsterdam, Holandija

9:00- 9:30 Nove informacije u razvoju lijekova u pedijatrijskoj onkologiji

                 Auke beishuizen, Roterdam, Holandija

9:30- 10:00 Pedijatrijski lijekovi: Uloga organizacija roditeja

                    Catherine Vergely, Francuska

 

  1. sesija 10:30- 12:30- U prostorijama Društva za rak

Predsjedavajući: Geoff Thaxter, Ujedinjeno Kraljevstvo- Pia Bonini, Italija

Naziv: Blizanac program: “Blizanac program”- kako da se dogodi? Primjeri programa podrške organizacijama roditelja

10:45- 11:00 Kiderbkrebshilfe Austrija- Fond Viden, Ukrajina

                      Fritz Hausjell, Austrija I Svetlana Shut, Ukrajina

11:00-11:15 Een Haerz fiir krebskrank Kanner, Luxemburg- A heart for children with cancer, Bosnia and Herzegovina

                     Marie Marthe Bruck- Clees, Luxemburg i Sabahudin Hadžialić, Bosna i Hercegovina

11:15-11:30 Lisa Thaxter Trust, Ujedinjeno Kraljevstvo- Ashic, Bangladeš

                      Geoff Thaxter, Ujedinjeno Kraljevstvo I Selma Choudhury, Bangladeš

11:30- 12:30 Diskusija

 

Velika Britanija & Banglades "blizanac program"
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United Kingdom & Bangladesh twining program

Austrija & Ukrajina "blizanac program"
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Austria % Ukraine twining program

Luksemburg &Bosna i Hercegovina "blizanac program"
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Luxemburg & Bosnia and Herzegovina twining program

Bosna i Hercegovina "Srce...."
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Bosnia and Herzegovina "The heart for the kids with cancer in FBiH"

12.  Sesija 13:30- 15:30 U prostorijama Društva za rak

Predsjedavajući: Simona Lala

Tema: ICCCPO historija i budući planovi

13:30- 14:00 ICCCPO, historija deset godina, Gerlind Bode, Njemačka

10:00- 15:30- Interaktivna sesija

 

 

 

13.  ICCCPO Godišnja Generalna Skupština 16:00- 17:00- U prostorijama Društva za rak

Predsjedavajući: Simon Lala, Novi Zeland

 

12. Session 13.30-15.30 - CANCER SOCIETY

Chair:            Simon Lala

Theme:          ICCCPO History and future plans

13.30-14.00    ICCCPO, a history of ten years. Gerlind Bode, Germany

14.00-15.30 Interactive Board Session

 

 

 

13.   ICCCPO Annual General Assembly 16.00-17.00 - CANCER SOCIETY

                  Chair:                         Simon Lala, New Zealand

 

Otvaranje godisnje Skupstine ICCCPO
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Simon Lala, president of ICCCPO opening AGA of ICCCPO

Izvrsni komitet ICCCPO
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E.C. of ICCCPO

Zajednicka fotografija....
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Joint photo...

Magazin Profil..septembar 2004.g. po povratku
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Magazine profile...September 2004..after return to Bosnia and Herzegovina

Magazin Profil...II dio
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Magazine Profile...II part

  ICCCPO DINNER
ICCCPO večera- HOLMENKOLLEN RESTORAN
 

Neli, Mendi i Mari iz Luksemburga
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Nelly, Mandy and Marie- Martha from Een Haerz fiir krebskrank Kanner- Luxemburg

Sabi, Irina Ban iz NURDOR-a- SCG i Sead
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Sabahudin Hadzialic, Irina Ban from NURDOR Serbia and Montenegro and Sead Dedic

Mari, Sabi i Sead
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Marie- Marthe Bruck Clees from Een Haerz fiir krebskrank Kanner Luxemburg, Sabi and Sead

Sabi i Den Mornar iz Vankuvera- Kanada
sabdan.jpg
Sabahudin Hadzialic and Dan Mornar from Vancuver- Canada

Sead, Sabi i Simon sa Novog Zelanda
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Sead, sabi and Simon Lala from New Zealand, president of ICCCPO

The E- mail we have received on 28.09.2004 from the ICCCPO Secretariat:
 
Dear friends,
 
The ICCCPO Conference and AGA in Oslo has been a  success.
 
More delegates than ever participated in the meeting and exchanged programmes, talked about twinning experiences, family issuse, survivors, school and learned about new developments in paediatric oncology. Also the Survivors' Programme, supported by CLIC UK,  was  very interesting.
 
In the Newsletter we will publish some of the papers that were presented in Oslo.
 
Twelf organisations made a contribution to the Parents Helping Parents Fund and gave us the opportunity to support members from developing countries to attend this meeting.
ICCCPO celebrated its Tenth Anniversary with a special session and a Tenth Anniversary Booklet (supported by the Luxembourg group) that has been sent to all members.
 
The AGA approved the membership of 12 new organisations, and ICCCPO now has 76 members from 57 countries.
 
The social programme was excellent, thanks to our host, the Norwegian parent organisation SKB.
 
We hope to meet you all (again) next year where the SIOP and ICCCPO will meet together (Sept. 21-24) in Vancouver, Canada.
We will keep you informed about the programme.
 
Warm regards,
on behalf of the Executive Committee,
 
drs. Marianne C. Naafs-Wilstra,
chair OSLO Conference
 

Mail of support...Mailovi podrske:
 
30.09.2004.
 
....Thank you for those nice pictures which I could pick up for my next Union meeting in France within one week! .....
Thanks a lot
Cécile Galzy
UNAPECLE - France
 
....Hvala Vam za ove lijepe slike koja mogu preuzeti za slijedeci sastanak moja Asocijacije u Francuskoj naredne sedmice!...
Mnogo hvala
Cécile Galzy
UNAPECLE - Francuska